for ocular Epidermolysis Bullosa
Navigating Epidermolysis Bullosa
Understanding the Challenges and Solution
Epidermolysis Bullosa (EB) is an ultra-rare genetic disorder characterized by fragile skin that is prone to blistering and tearing from minor friction or trauma. This condition primarily affects children, presenting a lifelong challenge that demands specialized care and attention.
EB's impact on patients is profound. It affects not only the skin but also mucous membranes, leading to painful sores and potential complications. Daily tasks that most of us take for granted can be extraordinarily challenging for those with EB.
Amidst the numerous challenges of EB, its impact on the eyes is often overlooked. Yet, the ocular manifestations of this condition are profound and painful, and if left unaddressed, they can lead to blindness. Recognizing the pivotal role of ocular health in patient quality of life, we're driven by a singular mission: to forge solutions that address this unmet need.